What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

A kind soul here on Lemmy gifted me Gotham Knights. I don't have rhe energy to play at the moment but one of my kids will probably appreciate it.

Just wanted to share here because I know a lot of us have gone through gaslighting from the medical system which often results in extensive trauma.

You are not alone. And this study shows it.

What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

I got some new wet wipes and will henceforth usher in a brand new age of cleanliness!

Oh, and my Christmas present for my wife arrived and it's lovely seeing her wonder what's in it. It's a T-Rex skull replica. And I ordered at the corded time because now it's sold out.

From https://www.instagram.com/reel/DBdIvr0xV1M/

What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

My mom sent me a Weckmann for the St Martins feast because we don't have those here.

It's fat and ugly and missing an eye (ugh, raisins, don't like them anyways) and I love it!

!

What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

With all the election stuff at least we have some good memes again. And on top of everything our government (in Germany) is currently breaking up, which means even more funny memes. Hooray!

Our internet went down an hour ago and I have to contend with the crappy metered connection in my phone. Really strange feeling how isolated I suddenly am. Took a while until all my family member's phones switched from wifi to mobile.

My laptop, which is my usual connection to the world, is still out. Guess I'll open up a hotspot. Until all my data is gone.

Very humbling.

We’re going to need to stick together and help our most vulnerable if we are to survive the next four years.

What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

I got a pedicure yesterday because the cornea on my feet was getting too thick. So now I can actually feel the ground beneath my feet on the rare occasion that I do get out of bed.

I feel like if he gets his way I’ll be prescribed sunshine, exercise, raw milk, and whatever drug a pharmaceutical bribed him to sell, instead of the immunomodulators I really need.

He’s like a mix of your uncle who thinks your chronic illness would go away if you “go outside and get some sunshine, stop being so negative, and eat more xyz” and your aunt who believes “acupuncture and supplements will cure you and all other medicines are a conspiracy”.

What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

For me, we're getting pizza today because my caretaker is too tired to cook. Sure it's not healthy and expensive. But it's pizza! Woohoo! And as a bonus it's Hawaiian.

I wake up, I eat, I read a little, I go back to sleep. I wake up, I eat, I read a little, watch a show with my wife, go back to sleep. I try not to eat more than 1500 calories because my activity level is so low I'll get fat if I go above that.

What's the end game here?

EDIT, FOR CLARITY:

I can't work. I need to sleep like 14 hours a day. I'm exhausted all the time. I get fatigued after about 5 to 10 minutes worth of any labor, including things like going upstairs or loading a dishwasher. My hands shake all the time, to where I can almost not clip my own fingernails anymore.

I work a job for years and retired from it there's plenty of money coming in. I just find myself in a place now where this chronic, undefined illness has taken over my life.

I've been chronically ill my whole life. My job was very accommodating while I searched for actual answers. This is the first job I've had where I can actually take time to care for myself without getting in trouble.

Anyway, I finally got an answer to what my illness is after desperately searching for 20 years. I have lupus, specifically SLE. I always suspected it, but rheumatologists never took me seriously until now. I have to make a 2 hour trip, one way, to see my doctor, but it's worth it.

I sat down with my boss after getting my diagnosis and discussed how the disease could potentially impact my life and working ability. I discussed every important aspect of it so my boss and I are on the same page. He was so supportive and kind and I cried because it is so amazing to be supported like that in the workplace.

I truly hope the rest of you can find/have an employer like mine.